Dedicated to everyone impacted by IgG4-RD.
We are the only foundation solely focused on bringing this rare disease out of the darkness and into the light.
Dedicated to everyone impacted by IgG4-RD.
We are the only foundation solely focused on bringing this rare disease out of the darkness and into the light.
Our mission as the first and only organization solely dedicated to IgG4-RD advocacy, research, and support is to improve the lives of people living with IgG4-RD through education, expanding disease awareness globally, facilitating groundbreaking research, and being the trusted source of truth for IgG4-RD patients, caregivers, and healthcare providers.
What we do
Connect with other IgG4-RD patients by joining our online community. Attend in-person & virtual events. Strengthen self advocacy.
We are building the first IgG4-RD online education program so patients, caregivers can finally have a single source of truth (launch in 2026).
Stay up to date on the latest clinical trials, research and news related to IgG4-RD.
Help raise awareness of this rare disease and the local and global level.
Our community - together we are stronger.
When you join our online community you can find belonging, make new connections, engage in different chat topics, and stay up-to-date on clinical news, in-person and virtual events, and monthly webinars.
Our values
Leadership
We are the only organization dedicated to IgG4-RD patients globally and the trusted leaders in disease research, education, and awareness.
Education
Providing a single source of truth to educate patients, caregivers and the global medical community.
Collaboration
We drive discovery, innovation and progress by uniting the patients’ lived experience with the expertise of clinicians and researchers.
Perserverance
Our work is fueled by determination, heart and the sharing of a common goal: a better path 4ward - and ultimately, a cure.
Science-focused
Every medical discovery we have made and will continue to make is rooted in scientific rigor.
Meet the IgG4ward! Team & Board Members
The IgG4ward! Foundation is run by Dr. John H. Stone, Founder and Executive cChairman, and Katharine Provencher, Director of Advocacy and Community Engagement. The two of them work tirelessly to fulfill the foundation mission, and they have created a board of directors and advisory board comprised of patients, caregivers, and a collection of the leading clinical minds in this disease, both domestically and internationally.
The Latest from IgG4ward!
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Thank you to our sponsors
We want to thank all individual contributors who have supported and continue to support IgG4ward! If your company is interested in supporting IgG4ward!, please contact us using this form.
