IgG4-RD resource library

IgG4ward! EuroJAM Session 2: Challenges in the journey to diagnosis with Dr. Emma Culver

Why is IgG4-related disease so difficult to diagnose? In Session 2 of IgG4ward! EuroJAM, Dr. Emma Culver explores the factors that contribute to diagnostic delays and discusses how awareness, education, and collaboration can help improve the diagnostic journey for patients and families.

IgG4ward! EuroJAM Session 1: The history and evolution of IgG4-related disease

The inaugural IgG4ward! EuroJAM opened with a powerful reminder that no one should face IgG4-related disease alone. In Session 1, Dr. John Stone explores the history and evolution of IgG4-RD, tracing the discoveries that led to recognition of the disease and continue to shape research and patient care today.

IgG4ward! EuroJAM: Hope in action

Hope was a theme throughout the IgG4ward! EuroJAM - but not as wishful thinking. Patients, caregivers, researchers, physicians and industry partners came together to share knowledge, build connections and move the conversation around IgG4-related disease forward. Here's a look back at the event and what's coming next.

Introducing the IgG4ward! Academy: A New Educational Library for the IgG4-RD Community

Introducing the IgG4ward! Academy, a new educational library designed to help patients, caregivers, physicians, and healthcare professionals better understand IgG4-related disease through self-paced lessons, videos, scientific references, and interactive learning tools.

IgG4ward! EuroJAM: A Multidisciplinary Approach to Advancing IgG4-Related Disease

EuroJAM 2026 brings together a global, multidisciplinary faculty to advance care and research in IgG4-related disease (IgG4-RD). Spanning 10+ specialties, the meeting reflects the collaborative approach required for accurate diagnosis and effective management. Explore the program and register to join the conversation in London.

How to Cope and Live with Chronic Illness: Reflections from Our Caregiver's Conversation

Give an hour

Sam, steroids and me

Kim Skelly’s IgG4-RD Story

IgG4ward! Caregiver’s Conversation: Coping with Stress, Trauma & Self-Preservation in IgG4-RD

Andy Provencher’s IgG4-RD Story

A Rarity In Autoimmunity: IgG4-RD is More Common in Males

Celebrating progress in the vasculitides, old and new

Proliferative features of IgG4-related disease

Fibrotic phenotype of IgG4-related disease

Perseverance on the Trail and in Living with a Rare Disease: Connecting Vermont Rare and IgG4ward! through Community and Hope.

Navigating Insurance Barriers in IgG4-RD Care: Insights from the Alliance for Patient Access and the IgG4-RD Community

Highlighting Men’s Health and Mental Health: A Conversation with an IgG4-RD Patient

Understanding Mental Health Challenges in IgG4-RD: Personal Stories of Resilience, Reflection, and Mental Health

Understanding Mental Health: Personal Stories Part 2 – The Things They Can’t See

Understanding Mental Health Challenges in IgG4-RD: Expert Insights and Guidance

Understanding the Impact of Mental Health on People Living with IgG4-RD

Mental Health Awareness Month & the IgG4-RD Community

National Patient Experience Week – An IgG4-RD Perspective

Exploring Different Rare Disease Perspectives – Mental Health Awareness Month

Positive Outcomes from an Early IgG4-RD Diagnosis

Experience the IgG4ward! JAM: Voices of Hope on Giving Tuesday!

IgG4ward! Blog Series: Taking care of your heart

When the Body Speaks: How My Childhood Illness Shaped My Work in Advocacy

IgG4ward! EuroJAM: Answers to Your Frequently Asked Questions

The Diagnostic Dilemma in IgG4-related disease (IgG4-RD)

IgG4ward! EuroJAM: What to Expect and How to Plan Your Visit

Looking Ahead: IgG4ward!’s 2026 Events & Programs

IgG4ward! EuroJAM: A Message from Our Host, Dr. Emma Culver

IgG4ward! Community Support Meetings

Double the Hope: Thank You for Doubling the Hope in 2025

Living With IgG4-Related Disease: Awareness, Hope & Double the Hope

As We Close 2025: Reflecting on Community, Impact & What Comes Next

Announcing the IgG4ward! EuroJAM

PeachJAM Video Series: Expert Panel Q & A on IgG4-related disease (RD)

One Father’s Journey With IgG4-RD — And How Your Gift Can Double the Hope

PeachJAM Video Series: How Do I Know if My IgG4-RD Is Active?

IgG4ward! PeachJAM Video Series: Patient Voices & Clinical Trial Participation in IgG4-RD

Understanding IgG4-RD: Two Years of Moving Hope Forward

IgG4ward! PeachJAM Series: Avoiding Side Effects in IgG4-related Disease (IgG4-RD)

Reflection from American College of Rheumatology (ACR) Convergence 2025

IgG4ward! PeachJAM Series: Applying Clinical Trial Results to Practice – How Should IgG4-RD Be Treated Now & in 2026?

The Road to Diagnosis – Lessons Learned

A Hearty Thank You! to the IgG4ward! Foundation’s Supporters! & Announcing the Foundation’s “Double the Hope” Campaign igg4ward

IgG4ward! PeachJAM Recap: Gratitude, Connection & Hope

The IgG4ME! App Has Arrived – Simplify Your IgG4-RD Journey

Vaccines & IgG4-RD: Expert Guidance from Our Fireside Chat

Hear Why We’re Talking About Vaccines — An IgG4-RD Patient Story

Watch the Fireside Chat: IgG4-RD and Retroperitoneal Fibrosis

IgG4-RD and Treatment | Fireside Chat Recap + Downloadable Guide

Mental Health and IgG4-RD – Part Two: A Caregiver’s Perspective

Mental Health and IgG4-RD: Treating the Whole Person

Talking About IgG4-related disease (IgG4-RD): Insights from the Caregiver’s Conversation

New and Updated IgG4-RD Resources from IgG4ward!

Hope Is Here: A Breakthrough Moment for the IgG4-RD Community

Fireside Chat: Pancreatic & Biliary Insights in IgG4-related disease

IgG4-RD & Rare Disease Day: The Power of Support, Awareness & Advocacy

IgG4ward! Rare Disease Week: Facing the Daily Challenges of IgG4-RD

Have you met Sam?—Your guide to Steroid Management and Education

Shining a Light on IgG4-RD During Rare Disease Week

Fireside Chat: Nutrition and IgG4-RD

New Year Message from Dr. John H. Stone

Counting Down to 2025 with IgG4ward!

IgG4ward! Jam Video Series- Video 7 - Managing IgG4-RD Treatment Side Effects: Avoiding the Side-Effects of Treatment, Steroids, B-Cell Depletion & Vaccines with Dr. John H. Stone

IgG4ward! Jam Video Series- Video 6 -Understanding the Extent of the Disease and Monitoring Over Time for Relapse with Dr. Mollie Carruthers

IgG4ward! Jam Video Series- Video 5 -Making a Correct IgG4-RD Diagnosis with Dr. Guy Katz

IgG4ward! Jam Video Series- Video 4 - Retroperitoneal Fibrosis

IgG4ward! Jam Video Series- Video 3 - IgG4-RD and The Lungs

IgG4ward! Jam Video Series- Video 2 - The History of IgG4-RD: Why in the world did it take so long to recognize it- and how can we raise awareness?

IgG4ward! Jam Video Series- Video 1 - Welcome to the Jam & the role and impact of theIgG4ward! Foundation

Good Question Series: Special Edition – Vaccine Follow-up Questions

IgG4ward! Good Question Series: RPF Fireside Chat Follow-Up – Your Questions Answered

Good Question: Why Do I Feel “Off” After Getting Diagnosed with IgG4-RD?

Good Question: Why IgG4-related disease? (IgG4-RD)

IgG4ward! Good Question Series: What is the IgG4ward! Academy?

IgG4ward! Good Question Series: Measles and the Measles Vaccine – What IgG4-RD Patients Need to Know

IgG4ward! Good Question Series: Staying Protected Against Respiratory Viruses—What Vaccines Do I Need?

IgG4ward! Good Question Series: Can a Patient Be Treated Without an Official Diagnosis?

My blood IgG4 level is very high, yet all other tests of organ function are normal. How should I interpret my high blood IgG4 level?

“Does IgG4-RD occur in children and, if so, is it different from the disease seen in adults?”

“I have enlarged lacrimal glands. A biopsy was done on a lesion from one of the glands showing IgG:IgG4 ratio ~100% and 236 IgG4 blood level. I haven’t been officially diagnosed with IgG4-RD. What can happen if I refuse the prednisone?”

While rituximab is often seen as a “wonder drug” for IgG4-RD patients, Dr. Michael Bamber, who lives with IgG4-RD, shared a sobering story about his recent episode of sepsis. He was left to wonder, “Could rituximab somehow have played a role?”

Question of the Week: Is moderate alcohol consumption OK if I’ve had pancreatitis in the past and still have elevated liver function tests?

Question of the Week: Can IgG4-RD be controlled by diet?

Question of the Week: Will the risk of PjP infections be higher or lower compared with prednisone of patients with IgG4-RD who are treated with B cell depletion?

Should IgG4-RD patients worry about infections such as Pneumocystis jiroveci pneumonia (PJP)? 

IgG4-RD Question of the Week – IgG4-RD, the salivary glands, other potential organ involvement, and insurance coverage

IgG4-RD Question of the Week: Were “Comfort Measures Only” Appropriate?

Question of the Week: “Should I continue on prednisone or should I switch to another treatment – for example, B cell depletion?”

Question of the Week: “It’s been more than a year since my last rituximab infusion and my CD20 count is back in the normal range. Why do I not have any signs of an IgG4-RD flare?”

IgG4ward! Question of the Week: “Which blood tests should be monitored in IgG4-RD, and how often should they be checked?”

IgG4ward! Question of the Week: “How is the effectiveness of B cell depletion determined after the treatment is administered?”