Date:
May 22 2026 - May 23 2026
Time:
All day
Location:
University College London
Category:
Patient Advocacy Meetings
Join us on May 22-23, 2026. This two-day gathering brings together patients, caregivers, families, and supporters from across Europe and beyond for an in-person patient event hosted at the historic Senate House, University College London.
RegisterIgG4ward! EuroJAM — A Patient Advocacy Meeting
Join us at the IgG4ward! EuroJAM
The IgG4ward! EuroJAM is a patient-focused, in-person event taking place May 22–23, 2026, at Senate House, University College London.
This two-day gathering is dedicated to learning about IgG4-related disease (IgG4-RD) while bringing together the IgG4-RD community for connection, shared understanding, and support.
EuroJAM is open to people living with IgG4-RD, as well as their families, friends, and caregivers. This marks the first patient-focused IgG4-RD event held in Europe, with London selected for its accessibility to individuals traveling from across the UK and the European continent.
What to Expect:
Expert-led educational sessions tailored for patients and caregivers
Small-group facilitated discussions to share stories, ask questions, and build connection
Opportunities to meet others living with IgG4-RD and form meaningful relationships
A welcoming, supportive environment focused on community, knowledge, and hope
London was selected for its accessibility to individuals traveling from across the UK and the European continent — ensuring that this event is as inclusive and reachable as possible.
Speakers
Emma Culver MD
Consultant Hepatologist, John Radcliffe Hospital, Oxford, United Kingdom
John Stone, MD, MPH
Professor of Medicine, Harvard Medical School, Boston, United States, Executive Chairman, IgG4ward! Foundation
Katharine M. Provencher, MSW
Director of Advocacy and Community Engagement, IgG4ward! Foundation, United States
Emanuel Della Torre, MD
Internal Medicine/IgG4-RD Specialist, San Raffaele Hospital, Milan, Italy
James Tomlinson, MD
Renal Medicine/Nephrology, Imperial College London, London, United Kingdom
Joana Teles, CNS
Chronic Kidney Disease Clinical Nurse Specialist, Imperial College London, London, United Kingdom
Stephen Porter, MD
Oral Medicine/ENT, University College London, London, United Kingdom
Maria Leandro, MD
Consultant Rheumatologist, University College London, London, United Kingdom
Florian Wernig, MD
Endocrinology, University College London, London, United Kingdom
Claire Rice, MD
Neurology, Bristol, United Kingdom
Adedoyin Dawodu, CNS
Clinical Nurse Specialist (Ophthalmology/Rheumatology) Oxford University Hospitals, Oxford, United Kingdom
Rubeta Matin, MD
Dermatologist, Oxford University Hospitals, Oxford, United Kingdom
Archie Hughes-Hallett, MD
Urology, Imperial College London, London, United Kingdom
Matthias Löhr, MD, PhD
Professor of Pancreatology, Karolinska Institute, Sweden
Liane Reeves, RD
Dietitian, Oxford University Hospitals, Oxford, United Kingdom
Marco Lanzilotta, MD
Internal Medicine/IgG4-RD Research, San Raffaele Hospital, Milan, Italy
José Ballarín Castán, MD
ERN ReCONNET Patient Advisory Group IgG4-RD, Spain
Dave Jones, MD
NIHR Rare Disease Research/IgG4-RD, New Castle, United Kingdom
Nik Sabharwal, MD
Cardiology, John Radcliffe Hospital, Oxford, United Kingdom
Vinciane Rebours, MD
Gastroenterology/Pancreatic Disease, Paris, France
Nicolas Schleinitz, MD
Internal Medicine, Marseille, France
Fernando Martínez-Valle, MD
Internal Medicine, Barcelona, Spain
Jenny O’Donoghue, CNS
Gastroenterology/Hepatology Clinical Nurse Specialist, Oxford University Hospitals, Oxford, United Kingdom
Jan van Laar, MD, PhD
Professor of Rheumatology/Internal Medicine , Rotterdam, The Netherlands
Radisson Blu Tottenham Court Road
4-Star Hotel Link 2-minute walk from the venue
Preferential rate: £339 per night Includes: VAT and breakfast for one adult
Booking: Call: +44 (0)20 7764 0554
Email: reservations.tottenhamcourtroad@radissonblu.com
Attendees will receive a preferential booking code (pending - stay tuned for more information)Royal National Hotel
3-Star Hotel Link 5-minute walk from the venue
Preferential rate: £189 per night
Booking: Call: +44 (0)207 278 7871
Email: info@imperialhotels.co.uk
Reference Code:Pinnacle Administration Marker Hotel
2-Star Hotel Link 3-minute walk from the venue
Rate: £239 per night
Note: No preferential EuroJAM rate applies info@markerhotel.co.ukCeltic Hotel
2-Star Hotel Link 6 minute walk from the venue
Rate: £$179.00
Note: No preferential EuroJAM rate applies celtichotel@celtichotel.com
Additional Accommodation Options
London offers many additional accommodation choices, including hotels and short-term rentals such as Airbnb. However, we strongly encourage attendees to make reservations early, as late May is a busy travel period in London. A limited number of travel stipends will be available. Details to come soon.
Agenda
Day 1 - May 22
10:00 - 10:20
Welcome and Opening Remarks
With Dr. Emma Culver, Dr. John Stone and Katharine Provencher
10:20 - 10:55
Opening Keynote
Where Have We Come From? The History and Evolution of IgG4-related disease.
Dr. John Stone
10:55 - 11:35
Plenary Session #1
Challenges in the Journey to Diagnosis: getting the diagnosis right and why it matters.
Dr. Emma Culver
11:35 - 11:50
Morning Break
11:50 - 12:30
Plenary Session #2
Effective Treatments for IgG4-RD: what are the options and why do we treat?
Dr. Emanuel Della Torre
12:30 - 1:30
Transition Break
1:30 - 2:30
Breakout Session #1
Participants choose ONE:
Kidney IgG4: high blood pressure and water retention
Dr. James Tomlinson
PancreatoBiliary IgG4: stenting, bile acids and nutrition
Dr. George Webster, Catherine Nash
Head and Neck IgG4: swollen glands, dryness and oral hygiene
Dr. Stephen Porter
Hormone Function and Diabetes Control
Dr. Florian Wernig
2:30 - 2:40
Afternoon Break
2:40 - 3:40
Breakout Session #2
Participants choose ONE:
Head and Eyes IgG4: sight, balance, and walking
Dr. Claire Rice, Adedoyin Dawodu
Skin IgG4: itching and rashes
Dr. Ruberta Matin
Retroperitoneal Fibrosis: back pain and stents
Dr. Arche Hughes-Hallett, Joana Teles
Pancreas IgG4: enzyme replacement, sugar control, and nutrition
Dr. Matthias Löhr, Liane Reeves
3:55 - 4:30
Plenary Session #3
Central Concept of Teamwork and Communication in Improving Patient care: multi-disciplinary teams.
Dr. Emma Culver
Input from the specialists:
Dr. Tomlinson (Renal), Dr. Leandro (Rheumatology), Dr. Webster (PancreatoBiliary), Dr. Wernig (Endocrine), Dr. Rice (Neurology), Dr. Hughes-Hallet (Urology) and Dr. Porter (ENT)
6.30 - 9.00
Reception and Evening Dinner
A hosted dinner with time for connection, conversation, and community building.
Day 2 - May 23
8:00 - 8:40
Breakfast
8:45 - 9:25
Keynote
Living with IgG4-RD Across Europe: Quality of Life, Holistic Patient Care and Networking
Dr. Emanuel Della Torre
Dr. José Ballarin
9:25 - 10:15
Plenary Session #3
Clinical Trials and Clinical Research: What are they and why to enroll?
To Be Announced
10:15 - 10:30
Morning Break
10:30 - 11:30
Breakout Session #3
Participants choose ONE
Fatigue and Brain Fog: causes and strategies
Dr. Dave Jones
Heart and Vessels: breathlessness, dizziness, and chest pain
Dr. Nik Sabharwal
B cell therapies: vaccinations, infection risk, monitoring and frequency
Dr. Vinciane Rebours
Side effects of Medications: steroids and DMARDs - recognition and how to manage them
Dr. Nicolas Schleinitz
11:30 - 11:40
Transition Break
11:40 - 12:40
Breakout Session #4
Participants choose ONE:
Side effects of Medications: steroids and DMARDs - recognition and how to manage them
Dr. Maria Leandro, Adedoyin Dawodu
Disease Flares: monitoring and what to look out for
Dr. Fernando Martinez-Valle
Outcomes: what should I expect for my future?
Dr. Jan van Laar
Why me, and what is the risk to my family?
Dr. Nicolas Schleinitz
12:40 - 1:00
Grab-andGo Lunch/Light Fare
1:00 - 2:00
Interactive KOL Q&A Panel: Key Opinion Leaders answer questions from attendees
Dr. John Stone, Dr. Emma Culver, Dr. Fernando Martinez-Valle, Dr. Nicolas Schleinitz, Dr. Jan van Laar and Dr. Matthias Löhr
2:00
Closing Remarks and EuroJAM Wrap-Up
Dr. John Stone, Katharine Provencher and Dr. Emma Culver
Host
Emma Culver MD
Consultant Hepatologist
John Radcliffe Hospital Oxford, United Kingdom