IgG4ward! EuroJAM: What to Expect and How to Plan Your Visit

This years program

We are happy to share additional details about the program structure, key focus areas, and travel planning for the IgG4ward! EuroJAM. The EuroJAM will be a two-day, in-person gathering for the IgG4-related disease (IgG4-RD) community, bringing together patients, caregivers, families, and supporters from across Europe and beyond.

Held at Senate House, University College London, the EuroJAM is designed to balance focused education with interactive discussion and meaningful community connection. Attendees will be able to choose sessions most relevant to their own experience.

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A Closer Look at the IgG4ward! EuroJAM

The EuroJAM program reflects the real questions and decisions faced by people living with IgG4-RD, balancing foundational education, practical guidance, and shared experience.

Day One (May 22): Understanding the Disease & Treatment Landscape

Friday begins with sessions focused on the natural history and evolution of IgG4-RD, followed by discussion around definitions, diagnosis, and getting the diagnosis right—an issue many patients face for years.

Late-morning sessions explore treatment goals and therapeutic approaches, including steroids, steroid-sparing strategies, and B-cell–targeted therapies. These sessions are designed to help attendees better understand why treatment plans vary and how clinical decisions are made.

The afternoon features interactive breakout sessions, allowing participants to choose discussions most relevant to their own experiences. Example topics include:

  • Pancreatic disease

  • Retroperitoneal fibrosis

  • Kidney involvement

  • Orbital disease and vision

  • Neurological symptoms

  • Gastrointestinal issues

  • Lung involvement

  • Salivary gland disease

The day concludes with a session focused on multidisciplinary care, highlighting how specialists work together to support complex clinical decision-making.

That evening, attendees are invited to a hosted dinner and cocktail reception, offering time for relaxed conversation, connection, and community building.

Day Two (May 23): Research, Quality of Life & Living with IgG4-RD

Day Two looks toward the future of IgG4-RD care while also examining the lived experience of people affected by the disease.

Morning sessions focus on clinical research, patient registries, and clinical trials, including why participation matters and how research drives progress in rare disease care.

A patient voices panel follows, highlighting quality of life across Europe and emphasizing holistic care, peer support, and shared learning.

Additional breakout sessions address both organ-specific concerns and everyday challenges, including:

  • Hormonal and endocrine involvement

  • Liver and bile duct disease

  • Fatigue and brain fog

  • Dermatologic symptoms

  • Nutrition

  • Procedures

  • Self-care and self-advocacy

The EuroJAM concludes with an interactive question-and-answer panel, giving attendees the opportunity to ask questions directly and leave with greater clarity and understanding.

Travel Planning & Accommodations

EuroJAM will take place in central London, selected for its accessibility to attendees traveling from across the UK and the European continent.

Hotel Options Near the Venue

To support attendees traveling to London, we have arranged a selection of hotels within a short walking distance of the venue, offering a range of comfort levels and price points.

A limited number of rooms are available at preferential rates, offered on a first come, first served basis.

Highlighted options include:

  • Radisson Blu Tottenham Court Road (4-star) – 2-minute walk

  • Royal National Hotel (3-star) – 5-minute walk

  • Marker Hotel (2-star) – 3-minute walk

London has many additional hotel and short-term rental options, including Airbnb/Vrbo and other nearby accommodations. However, we strongly encourage attendees to make reservations early, as late May is a busy travel period in London.

A limited number of travel stipends will be available. Details to follow.

Register for the IgG4ward! EuroJAM

The IgG4ward! EuroJAM is a shared, in-person experience dedicated to education, empowerment, and connection within the global IgG4-RD community.

We look 4ward to welcoming you to London in May 2026.