Living With IgG4-Related Disease: Awareness, Hope & Double the Hope
Living with IgG4-related disease (IgG4-RD) can feel overwhelming, especially when awareness is limited.
The IgG4ward! Foundation exists to advance awareness and education, support patients and families, and share trusted information along with patient stories that bring understanding and hope.
A patient living with IgG4-related kidney and prostate disease shares why awareness, informed care, and hope matter.
A Patient Perspective on IgG4-RD
In the video shared with this post, Mr. Prah, who is living with IgG4-related kidney and prostate disease, reflects on what mattered most following his diagnosis.
He speaks about the importance of awareness – particularly among healthcare providers – and how having doctors who understood IgG4-RD early-on made a meaningful difference in his experience.
“Getting the word out is certainly going to benefit a lot of people.”
Living Well With IgG4-RD
Mr. Prah also shares a message many patients need to hear, especially early in their diagnosis.
“It’s definitely livable.”
Despite managing symptoms and making lifestyle adjustments, he feels strong and well – and does not wake up each day defined by his diagnosis. This message of hope is especially powerful for people newly-diagnosed with IgG4-RD.
Giving Back Through Double the Hope
Beyond sharing his story, Mr. Prah has also contributed to the Double the Hope campaign, helping to advance the Foundation’s mission 4ward through his own generosity and support.
In short, Mr. Prah has given back to those who helped him, in the hope of expanding the circle of help well beyond where he lives.
Double the Hope: We’re in the Final Stretch
With just over one week left, we are less than $3,000 away from reaching our Double the Hope goal!
From now through midnight on December 31st - every bit counts!
Support for the IgG4ward! Foundation helps us continue sharing patient stories, raising awareness of IgG4-related disease, and providing patients and families with trusted information and hope. Please, join us in doubling the hope.
