Shining a Light on IgG4-RD During Rare Disease Week

Your Story Matters – Share It with IgG4ward!

As we look ahead to Rare Disease Day on February 28, 2025—a day of tremendous significance for the entire rare disease community—we remain dedicated to raising the awareness of IgG4-RD. Even more importantly, we want to shine a spotlight on the remarkable individuals who make up our IgG4ward! community.

During the week leading up to Rare Disease Day, we will be highlighting your stories, experiences and resilience to show the world what it truly means to live with this rare disease.

IgG4-RD is a chronic condition that often goes misunderstood and underdiagnosed. Living with a rare disease can feel isolating, but sharing our stories can help us find connection, support and hope. By speaking up about our unique struggles, triumphs and day-to-day challenges, we can inform others and push for more research, better treatments and deeper compassion for everyone affected by IgG4-RD.

We would love to highlight YOUR stories throughout Rare Disease Week.

We encourage you to share your journey—no matter how big or small—and you may remain anonymous if you wish.

Every story matters and every voice counts.

Join IgG4ward to show the world who the IgG4-RD community is!

Please click the button below to tell us more about you, your role in the community and how you want to raise awareness for IgG4-RD.

This opportunity is open to all who are impacted by IgG4-RD.