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    • IgG4-RD resource library

    Explore our growing library of videos, articles, guidelines and educational programs meant to ease some of the challenges you face.

    Popular resources

    Watch the Fireside Chat: IgG4-RD and Retroperitoneal Fibrosis
    Watch the Fireside Chat: IgG4-RD and Retroperitoneal Fibrosis

    IgG4ward! Caregiver’s Conversation: Coping with Stress, Trauma & Self-Preservation in IgG4-RD
    IgG4ward! Caregiver’s Conversation: Coping with Stress, Trauma & Self-Preservation in IgG4-RD

    Popular topics and series

    PeachJAM 2025

    View our series of videos captured during our in-person patient advocacy event.
    Fireside Chat videos

    Watch our webinars with leading experts covering specific IgG4-RD topics.
    Personal health

    Learn about managing your life and mindset while living with IgG4-RD.
    Type:
    Topic:
    Series:
    Kim Skelly’s IgG4-RD Story
    Kim Skelly’s IgG4-RD Story
    Blog
    IgG4ward! Caregiver’s Conversation: Coping with Stress, Trauma & Self-Preservation in IgG4-RD
    IgG4ward! Caregiver’s Conversation: Coping with Stress, Trauma & Self-Preservation in IgG4-RD
    Video Personal Health
    Andy Provencher’s IgG4-RD Story
    Andy Provencher’s IgG4-RD Story
    Blog
    A Rarity In Autoimmunity: IgG4-RD is More Common in Males
    A Rarity In Autoimmunity: IgG4-RD is More Common in Males

    Article Research
    Celebrating progress in the vasculitides, old and new
    Celebrating progress in the vasculitides, old and new
    Article Clinical Trials
    Proliferative features of IgG4-related disease
    Proliferative features of IgG4-related disease
    Article Research
    Fibrotic phenotype of IgG4-related disease
    Fibrotic phenotype of IgG4-related disease
    Article Research
    Perseverance on the Trail and in Living with a Rare Disease: Connecting Vermont Rare and IgG4ward! through Community and Hope.
    Perseverance on the Trail and in Living with a Rare Disease: Connecting Vermont Rare and IgG4ward! through Community and Hope.

    Blog
    Navigating Insurance Barriers in IgG4-RD Care: Insights from the Alliance for Patient Access and the IgG4-RD Community
    Navigating Insurance Barriers in IgG4-RD Care: Insights from the Alliance for Patient Access and the IgG4-RD Community

    Blog
    Highlighting Men’s Health and Mental Health: A Conversation with an IgG4-RD Patient
    Highlighting Men’s Health and Mental Health: A Conversation with an IgG4-RD Patient

    Blog Personal Health
    Understanding Mental Health Challenges in IgG4-RD: Personal Stories of Resilience, Reflection, and Mental Health
    Understanding Mental Health Challenges in IgG4-RD: Personal Stories of Resilience, Reflection, and Mental Health
    Blog Personal Health
    Understanding Mental Health: Personal Stories Part 2 – The Things They Can’t See
    Understanding Mental Health: Personal Stories Part 2 – The Things They Can’t See
    Blog Personal Health
    Understanding Mental Health Challenges in IgG4-RD: Expert Insights and Guidance
    Understanding Mental Health Challenges in IgG4-RD: Expert Insights and Guidance
    Blog Personal Health
    Understanding the Impact of Mental Health on People Living with IgG4-RD
    Understanding the Impact of Mental Health on People Living with IgG4-RD
    Blog Personal Health
    Mental Health Awareness Month & the IgG4-RD Community
    Mental Health Awareness Month & the IgG4-RD Community
    Blog Personal Health
    National Patient Experience Week – An IgG4-RD Perspective
    National Patient Experience Week – An IgG4-RD Perspective
    Blog
    Exploring Different Rare Disease Perspectives – Mental Health Awareness Month
    Exploring Different Rare Disease Perspectives – Mental Health Awareness Month

    Blog Personal Health
    Positive Outcomes from an Early IgG4-RD Diagnosis
    Positive Outcomes from an Early IgG4-RD Diagnosis
    Blog
    Experience the IgG4ward! JAM: Voices of Hope on Giving Tuesday!
    Experience the IgG4ward! JAM: Voices of Hope on Giving Tuesday!
    Blog
    IgG4ward! Blog Series: Taking care of your heart
    IgG4ward! Blog Series: Taking care of your heart
    Blog
    When the Body Speaks: How My Childhood Illness Shaped My Work in Advocacy
    When the Body Speaks: How My Childhood Illness Shaped My Work in Advocacy
    Blog
    IgG4ward! EuroJAM: Answers to Your Frequently Asked Questions
    IgG4ward! EuroJAM: Answers to Your Frequently Asked Questions
    Join Our First Fireside Chat of the Year: Reflections from the IgG4ward! PeachJAM & CanJAM
    Join Our First Fireside Chat of the Year: Reflections from the IgG4ward! PeachJAM & CanJAM
    The Diagnostic Dilemma in IgG4-related disease (IgG4-RD)
    The Diagnostic Dilemma in IgG4-related disease (IgG4-RD)

    Video Diagnosis
    IgG4ward! EuroJAM: What to Expect and How to Plan Your Visit
    IgG4ward! EuroJAM: What to Expect and How to Plan Your Visit
    Looking Ahead: IgG4ward!’s 2026 Events & Programs
    Looking Ahead: IgG4ward!’s 2026 Events & Programs
    IgG4ward! EuroJAM: A Message from Our Host, Dr. Emma Culver
    IgG4ward! EuroJAM: A Message from Our Host, Dr. Emma Culver
    IgG4ward! Community Support Meetings
    IgG4ward! Community Support Meetings
    Double the Hope: Thank You for Doubling the Hope in 2025
    Double the Hope: Thank You for Doubling the Hope in 2025
    Living With IgG4-Related Disease: Awareness, Hope & Double the Hope
    Living With IgG4-Related Disease: Awareness, Hope & Double the Hope
    As We Close 2025: Reflecting on Community, Impact & What Comes Next
    As We Close 2025: Reflecting on Community, Impact & What Comes Next
    Blog
    Announcing the IgG4ward! EuroJAM
    Announcing the IgG4ward! EuroJAM
    PeachJAM Video Series: Expert Panel Q & A on IgG4-related disease (RD)
    PeachJAM Video Series: Expert Panel Q & A on IgG4-related disease (RD)
    Video
    One Father’s Journey With IgG4-RD — And How Your Gift Can Double the Hope
    One Father’s Journey With IgG4-RD — And How Your Gift Can Double the Hope
    Blog
    PeachJAM Video Series: How Do I Know if My IgG4-RD Is Active?
    PeachJAM Video Series: How Do I Know if My IgG4-RD Is Active?
    Video Treatment
    IgG4ward! PeachJAM Video Series: Patient Voices & Clinical Trial Participation in IgG4-RD
    IgG4ward! PeachJAM Video Series: Patient Voices & Clinical Trial Participation in IgG4-RD
    Video Clinical Trials
    Understanding IgG4-RD: Two Years of Moving Hope Forward
    Understanding IgG4-RD: Two Years of Moving Hope Forward
    IgG4ward! PeachJAM Series: Avoiding Side Effects in IgG4-related Disease (IgG4-RD)
    IgG4ward! PeachJAM Series: Avoiding Side Effects in IgG4-related Disease (IgG4-RD)
    Video Treatment
    Reflection from American College of Rheumatology (ACR) Convergence 2025
    Reflection from American College of Rheumatology (ACR) Convergence 2025
    Blog Research
    IgG4ward! PeachJAM Series: Applying Clinical Trial Results to Practice – How Should IgG4-RD Be Treated Now & in 2026?
    IgG4ward! PeachJAM Series: Applying Clinical Trial Results to Practice – How Should IgG4-RD Be Treated Now & in 2026?
    Video Treatment
    The Road to Diagnosis – Lessons Learned
    The Road to Diagnosis – Lessons Learned
    Video Diagnosis
    A Hearty Thank You! to the IgG4ward! Foundation’s Supporters! & Announcing the Foundation’s “Double the Hope” Campaign igg4ward
    A Hearty Thank You! to the IgG4ward! Foundation’s Supporters! & Announcing the Foundation’s “Double the Hope” Campaign igg4ward
    IgG4ward! PeachJAM Recap: Gratitude, Connection & Hope
    IgG4ward! PeachJAM Recap: Gratitude, Connection & Hope
    Blog
    The IgG4ME! App Has Arrived – Simplify Your IgG4-RD Journey
    The IgG4ME! App Has Arrived – Simplify Your IgG4-RD Journey
    Vaccines & IgG4-RD: Expert Guidance from Our Fireside Chat
    Vaccines & IgG4-RD: Expert Guidance from Our Fireside Chat
    Video Treatment
    Hear Why We’re Talking About Vaccines — An IgG4-RD Patient Story
    Hear Why We’re Talking About Vaccines — An IgG4-RD Patient Story
    Video Treatment
    Watch the Fireside Chat: IgG4-RD and Retroperitoneal Fibrosis
    Watch the Fireside Chat: IgG4-RD and Retroperitoneal Fibrosis

    Video Diagnosis
    From the IgG4ward! 2024 JAM to the IgG4ward! PeachJAM of 2025! Looking Back—and Ahead—with the IgG4ward! Community
    From the IgG4ward! 2024 JAM to the IgG4ward! PeachJAM of 2025! Looking Back—and Ahead—with the IgG4ward! Community
    Blog
    IgG4-RD and Treatment | Fireside Chat Recap + Downloadable Guide
    IgG4-RD and Treatment | Fireside Chat Recap + Downloadable Guide
    Pdf-download Treatment
    Mental Health and IgG4-RD – Part Two: A Caregiver’s Perspective
    Mental Health and IgG4-RD – Part Two: A Caregiver’s Perspective
    Mental Health and IgG4-RD: Treating the Whole Person
    Mental Health and IgG4-RD: Treating the Whole Person
    Personal Health
    Talking About IgG4-related disease (IgG4-RD): Insights from the Caregiver’s Conversation
    Talking About IgG4-related disease (IgG4-RD): Insights from the Caregiver’s Conversation
    Personal Health
    New and Updated IgG4-RD Resources from IgG4ward!
    New and Updated IgG4-RD Resources from IgG4ward!
    Hope Is Here: A Breakthrough Moment for the IgG4-RD Community
    Hope Is Here: A Breakthrough Moment for the IgG4-RD Community
    Video Treatment
    Fireside Chat: Pancreatic & Biliary Insights in IgG4-related disease
    Fireside Chat: Pancreatic & Biliary Insights in IgG4-related disease
    Video
    Fireside Chat: The Pancreas and Bile Ducts in IgG4-RD: A Conversation Between a Gastroenterologist and a Rheumatologist
    Fireside Chat: The Pancreas and Bile Ducts in IgG4-RD: A Conversation Between a Gastroenterologist and a Rheumatologist
    Video
    IgG4-RD & Rare Disease Day: The Power of Support, Awareness & Advocacy
    IgG4-RD & Rare Disease Day: The Power of Support, Awareness & Advocacy
    IgG4ward! Rare Disease Week: Facing the Daily Challenges of IgG4-RD
    IgG4ward! Rare Disease Week: Facing the Daily Challenges of IgG4-RD
    Blog
    Have you met Sam?—Your guide to Steroid Management and Education
    Have you met Sam?—Your guide to Steroid Management and Education
    Personal Health
    Shining a Light on IgG4-RD During Rare Disease Week
    Shining a Light on IgG4-RD During Rare Disease Week
    Fireside Chat: Nutrition and IgG4-RD
    Fireside Chat: Nutrition and IgG4-RD
    Personal Health
    New Year Message from Dr. John H. Stone
    New Year Message from Dr. John H. Stone
    Counting Down to 2025 with IgG4ward!
    Counting Down to 2025 with IgG4ward!
    Blog
    IgG4ward! Jam Video Series- Video 7 - Managing IgG4-RD Treatment Side Effects: Avoiding the Side-Effects of Treatment, Steroids, B-Cell Depletion & Vaccines with Dr. John H. Stone
    IgG4ward! Jam Video Series- Video 7 - Managing IgG4-RD Treatment Side Effects: Avoiding the Side-Effects of Treatment, Steroids, B-Cell Depletion & Vaccines with Dr. John H. Stone
    Video Treatment
    IgG4ward! Jam Video Series- Video 6 -Understanding the Extent of the Disease and Monitoring Over Time for Relapse with Dr. Mollie Carruthers
    IgG4ward! Jam Video Series- Video 6 -Understanding the Extent of the Disease and Monitoring Over Time for Relapse with Dr. Mollie Carruthers
    Video Treatment
    IgG4ward! Jam Video Series- Video 5 -Making a Correct IgG4-RD Diagnosis with Dr. Guy Katz
    IgG4ward! Jam Video Series- Video 5 -Making a Correct IgG4-RD Diagnosis with Dr. Guy Katz
    Video Diagnosis
    IgG4ward! Jam Video Series- Video 4 - Retroperitoneal Fibrosis
    IgG4ward! Jam Video Series- Video 4 - Retroperitoneal Fibrosis
    Video
    IgG4ward! Jam Video Series- Video 3 - IgG4-RD and The Lungs
    IgG4ward! Jam Video Series- Video 3 - IgG4-RD and The Lungs
    Video
    IgG4ward! Jam Video Series- Video 2 - The History of IgG4-RD: Why in the world did it take so long to recognize it- and how can we raise awareness?
    IgG4ward! Jam Video Series- Video 2 - The History of IgG4-RD: Why in the world did it take so long to recognize it- and how can we raise awareness?
    Video
    IgG4ward! Jam Video Series- Video 1 - Welcome to the Jam & the role and impact of theIgG4ward! Foundation
    IgG4ward! Jam Video Series- Video 1 - Welcome to the Jam & the role and impact of theIgG4ward! Foundation
    Video
    Good Question Series: Special Edition – Vaccine Follow-up Questions
    Good Question Series: Special Edition – Vaccine Follow-up Questions
    Blog Research
    IgG4ward! Good Question Series: RPF Fireside Chat Follow-Up – Your Questions Answered
    IgG4ward! Good Question Series: RPF Fireside Chat Follow-Up – Your Questions Answered
    Blog
    Good Question: Why Do I Feel “Off” After Getting Diagnosed with IgG4-RD?
    Good Question: Why Do I Feel “Off” After Getting Diagnosed with IgG4-RD?
    Blog Diagnosis
    Good Question: Why IgG4-related disease? (IgG4-RD)
    Good Question: Why IgG4-related disease? (IgG4-RD)
    Blog Diagnosis
    IgG4ward! Good Question Series: Organs Affected by IgG4-RD
    IgG4ward! Good Question Series: Organs Affected by IgG4-RD
    Blog Diagnosis
    IgG4ward! Good Question Series: Measles and the Measles Vaccine – What IgG4-RD Patients Need to Know
    IgG4ward! Good Question Series: Measles and the Measles Vaccine – What IgG4-RD Patients Need to Know
    Blog Research
    IgG4ward! Good Question Series: Staying Protected Against Respiratory Viruses—What Vaccines Do I Need?
    IgG4ward! Good Question Series: Staying Protected Against Respiratory Viruses—What Vaccines Do I Need?
    Blog Treatment
    IgG4ward! Good Question Series: Can a Patient Be Treated Without an Official Diagnosis?
    IgG4ward! Good Question Series: Can a Patient Be Treated Without an Official Diagnosis?
    Blog Treatment
    My blood IgG4 level is very high, yet all other tests of organ function are normal. How should I interpret my high blood IgG4 level?
    My blood IgG4 level is very high, yet all other tests of organ function are normal. How should I interpret my high blood IgG4 level?
    Blog Diagnosis
    “Does IgG4-RD occur in children and, if so, is it different from the disease seen in adults?”
    “Does IgG4-RD occur in children and, if so, is it different from the disease seen in adults?”

    Blog Research
    “I have enlarged lacrimal glands. A biopsy was done on a lesion from one of the glands showing IgG:IgG4 ratio ~100% and 236 IgG4 blood level. I haven’t been officially diagnosed with IgG4-RD. What can happen if I refuse the prednisone?”
    “I have enlarged lacrimal glands. A biopsy was done on a lesion from one of the glands showing IgG:IgG4 ratio ~100% and 236 IgG4 blood level. I haven’t been officially diagnosed with IgG4-RD. What can happen if I refuse the prednisone?”
    Blog Treatment
    While rituximab is often seen as a “wonder drug” for IgG4-RD patients, Dr. Michael Bamber, who lives with IgG4-RD, shared a sobering story about his recent episode of sepsis. He was left to wonder, “Could rituximab somehow have played a role?”
    While rituximab is often seen as a “wonder drug” for IgG4-RD patients, Dr. Michael Bamber, who lives with IgG4-RD, shared a sobering story about his recent episode of sepsis. He was left to wonder, “Could rituximab somehow have played a role?”
    Patient stories
    Question of the Week: Is moderate alcohol consumption OK if I’ve had pancreatitis in the past and still have elevated liver function tests?
    Question of the Week: Is moderate alcohol consumption OK if I’ve had pancreatitis in the past and still have elevated liver function tests?

    Blog Research
    Question of the Week: Can IgG4-RD be controlled by diet?
    Question of the Week: Can IgG4-RD be controlled by diet?

    Blog Research
    Question of the Week: Will the risk of PjP infections be higher or lower compared with prednisone of patients with IgG4-RD who are treated with B cell depletion?
    Question of the Week: Will the risk of PjP infections be higher or lower compared with prednisone of patients with IgG4-RD who are treated with B cell depletion?
    Blog Treatment
    Should IgG4-RD patients worry about infections such as Pneumocystis jiroveci pneumonia (PJP)? 
    Should IgG4-RD patients worry about infections such as Pneumocystis jiroveci pneumonia (PJP)? 
    Blog Research
    IgG4-RD Question of the Week – IgG4-RD, the salivary glands, other potential organ involvement, and insurance coverage
    IgG4-RD Question of the Week – IgG4-RD, the salivary glands, other potential organ involvement, and insurance coverage

    Blog Diagnosis
    IgG4-RD Question of the Week: Were “Comfort Measures Only” Appropriate?
    IgG4-RD Question of the Week: Were “Comfort Measures Only” Appropriate?

    Blog Treatment
    Question of the Week: “Should I continue on prednisone or should I switch to another treatment – for example, B cell depletion?”
    Question of the Week: “Should I continue on prednisone or should I switch to another treatment – for example, B cell depletion?”
    Blog Treatment
    Question of the Week: “It’s been more than a year since my last rituximab infusion and my CD20 count is back in the normal range. Why do I not have any signs of an IgG4-RD flare?”
    Question of the Week: “It’s been more than a year since my last rituximab infusion and my CD20 count is back in the normal range. Why do I not have any signs of an IgG4-RD flare?”
    Blog Treatment
    IgG4ward! Question of the Week: “Which blood tests should be monitored in IgG4-RD, and how often should they be checked?”
    IgG4ward! Question of the Week: “Which blood tests should be monitored in IgG4-RD, and how often should they be checked?”
    Blog Diagnosis
    IgG4ward! Question of the Week: “How is the effectiveness of B cell depletion determined after the treatment is administered?”
    IgG4ward! Question of the Week: “How is the effectiveness of B cell depletion determined after the treatment is administered?”
    Blog Treatment

    IgG4ward! EuroJAM — A Patient Advocacy Meeting

    Join us on May 22-23, 2026. This two-day gathering brings together patients, caregivers, families, and supporters from across Europe and beyond for an in-person patient event hosted at the historic Senate House, University College London.
    View More

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